Everleigh is 7 Months


Everleigh is now 11 lbs 16 oz, 24 inches long and HC is 13.75 inches.  After being evaluated, her motor skills is more at a 4 month old. Whenever my husband and I are told that she's not meeting her milestones or she's not neurologically where she should be, of course we get sad and wish things were different, but we shake it off and tell ourselves "we get to have a baby longer." Not many can say that. We are the lucky ones!




Everleigh has improved so much with tummy time. She is doing them for a longer period of time and also enjoying them more. Due to her high tone, we have to stretch her arms & legs and also massage her daily to loosen up her muscles. By doing this consistently, we hope she'll eventually be able to sit independently as well as hold her head up. 

Kiddos with her diagnoses have a 90% chance of having seizures. I have encountered many moments these past months that I thought she was having them. Thankfully, after taking her to do a 24 hour EEG (I'll share more on another post) the test results showed no signs of seizures.  Every time we get good news we feel so relieved but the worries never goes away. I try my best to surrender it to God, but it is a working progress.

Thank you for being here. We appreciate all the love & support we have received thus far. 

xo, Mama Song

Trust in the Lord with all your heart, and do not lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths. Proverbs 3:5-6


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